Category Archive

Advocacy

Cycle for Olly to raise SUDEP awareness

July 18, 2013

For Deb Fawcett, a special moment will happen on July 28. After bicycling more than 500 kilometres, she will complete the six-day Cycle for Olly that will take her and three other cyclists from Montreal to Toronto to raise awareness about sudden unexpected death in epilepsy (SUDEP). Her 15-year-old daughter, Jordan, passed away from SUDEP…

OTN staff show support for Epilepsy Ontario

June 20, 2013

Epilepsy Ontario executive director Rozalyn Werner-Arcé accepts a cheque for $2,800 from the Ontario Telemedicine Network. OTN raised the money during a two-month campaign focused on epilepsy awareness. Paula Ashley says she came away with a reinforced feeling of what a “caring and passionate” organization she works for, following the Ontario Telemedicine Network’s (OTN’s) two-month…

Advocates encouraged by gov’t response to Epilepsy Awareness Month

March 28, 2013

Representatives from epilepsy support agencies say they’re encouraged by the reception their advocacy work with government officials received this month, and hope their colleagues provincewide will continue talking with politicians about the epilepsy community’s needs after March 31. March is Epilepsy Awareness Month, and leaders from within the epilepsy community have been meeting with politicians…