Category Archive

Advocacy

Grassroots group to launch Dravet syndrome information website

August 9, 2012

A grassroots group of parents of children living with Dravet syndrome is working to form a Canadian branch of Dravet.org, a U.S.-based global collaboration of parents and medical experts dedicated to improving treatments for children with Dravet syndrome spectrum disorders and empowering families to cope with challenges. The parents, most of whom live in the…

Dad and daughter hope their awareness run sparks change

July 26, 2012

Trevor Lewis says he hopes the upcoming Run for Epilepsy he and his daughter, Katie, are organizing will help raise awareness about epilepsy in the community and possibly act as a catalyst for establishing an epilepsy agency in his hometown of Thunder Bay. Trevor notes that there’s a great need for more available resources for…

Strategy would bring relief to northern Ontarians living with epilepsy

July 12, 2012

While a provincial epilepsy strategy would help people affected by the neurological disorder access services in a timely manner, it would be especially beneficial to people living in northwestern Ontario, who often must travel long distances to receive treatment, says Trevor Lewis. Lewis and his 18-year-old daughter Katie live in Thunder Bay. They are both…

Purple Day gets national recognition

June 28, 2012

The Purple Day Act has received Royal Assent! March 26 is now an official day of epilepsy awareness across Canada. Cassidy Megan’s dream may soon become reality. Ever since she founded the first Purple Day on March 26, 2008, the now 13-year-old from Nova Scotia has envisioned an international day of epilepsy awareness. Purple Day,…