Category Archive

Advocacy

Purple Day gets national recognition

June 28, 2012

The Purple Day Act has received Royal Assent! March 26 is now an official day of epilepsy awareness across Canada. Cassidy Megan’s dream may soon become reality. Ever since she founded the first Purple Day on March 26, 2008, the now 13-year-old from Nova Scotia has envisioned an international day of epilepsy awareness. Purple Day,…

Advocate puts a face to the need for epilepsy strategy

June 28, 2012

Given the high number of Ontarians living with epilepsy, there needs to be an effective action plan to support the quality of life of people affected by the neurological disorder, says Miranda Zeppieri. Zeppieri, 28, knows this first-hand — she has had a seizure disorder caused by tuberous sclerosis her whole life, and this is…

Epilepsy strategy creates ‘once-in-a-lifetime opportunity’

June 22, 2012

One of the experts who helped develop the province’s epilepsy strategy is characterizing the proposal as a “once-in-a-lifetime opportunity” for people affected by the neurological disorder and physicians who treat patients with epilepsy. Dr. Carter Snead, who heads the neurology department at Toronto’s Hospital for Sick Children (SickKids), says the one in 100 Ontarians living…

Epilepsy community encouraged to show support for proposed provincial strategy

June 21, 2012

Epilepsy Ontario is urging the epilepsy community to help end disparities in epilepsy care in the province. Many people living with uncontrolled seizures in Ontario do not get access to the medical services they require. To address the problem and help people access services, a panel of epilepsy experts, in conjunction with the Ontario Health…