By Deron Hamel Monica Diaz-Greco recalls how, after her daughter Emma was diagnosed with infantile spasms at seven months old, she and her husband, Daniel, knew immediately they wanted to do something to not just help Emma but also others living with epilepsy. That impulse led the couple to co-found Emma IS, a nonprofit organization…
By Deron Hamel After having a seizure at age 9, Judith Thompson says her parents urged her not to tell anyone because, they said, people would be frightened and avoid her. Thompson, an award-winning Canadian playwright, screenwriter and recent first-time novelist, says her parents were doing what they thought was right and were trying to…
We are bringing back the #Iam1in100 campaign this March. Download the material below and help expand the representation of what it means to live with epilepsy. If you have epilepsy, download the sign that says “I have epilepsy and…” In the blank space provided, you can write about how you’re feeling or how you’re…
By Deron Hamel “Don’t let your epilepsy control you; it’s just one part of your life.” Rachel Croft says if she could write a letter to her younger self, this would be the opening sentence. Looking back, Rachel, now a university student, says when she experienced her first seizures she didn’t know what was happening,…
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