By Deron Hamel Monica Diaz-Greco recalls how, after her daughter Emma was diagnosed with infantile spasms at seven months old, she and her husband, Daniel, knew immediately they wanted to do something to not just help Emma but also others living with epilepsy. That impulse led the couple to co-found Emma IS, a nonprofit organization…
By Deron Hamel After having a seizure at age 9, Judith Thompson says her parents urged her not to tell anyone because, they said, people would be frightened and avoid her. Thompson, an award-winning Canadian playwright, screenwriter and recent first-time novelist, says her parents were doing what they thought was right and were trying to…
By Deron Hamel When she was 15, Taylor Kepka didn’t know what was happening when she had her first seizure – only that she was scared, disoriented and suddenly needed help from strangers. As frightening as this moment was, what stood out for her was the kindness she received from the paramedics who helped her…
By Deron Hamel For Alex Johnson, the phrase “Epilepsy: Hidden, Not Rare” resonated with him when he saw it printed across a sweater at the Epilepsy Shop, Epilepsy Ontario’s online store. Alex, who is living with epilepsy, says he felt a personal connection with the message, which prompted him to buy the sweater. “The message…
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