Category Archive

Advocacy

Survey seeking first-hand stories about living with epilepsy

November 22, 2012

A new survey available on the Epilepsy Ontario website is aiming to discover what the epilepsy community wants to talk about and to seek out people’s experiences of living with the neurological disorder and the key issues important to them. Epilepsy Ontario executive director Rozalyn Werner-Arcé says the organization is hoping the survey will provide…

Epilepsy Halton Peel Hamilton aiming to raise $50K in marathon

October 9, 2012

About 130 people will be running under the Epilepsy Halton Peel Hamilton banner at the Oct. 14 Scotiabank Toronto Waterfront Marathon, an annual five- and 2.5-kilometer run that raises money for a myriad of charities. The agency is hoping the event will raise $50,000. Money raised will continue to support the programs, services, education and…

Grassroots group to launch Dravet syndrome information website

August 9, 2012

A grassroots group of parents of children living with Dravet syndrome is working to form a Canadian branch of Dravet.org, a U.S.-based global collaboration of parents and medical experts dedicated to improving treatments for children with Dravet syndrome spectrum disorders and empowering families to cope with challenges. The parents, most of whom live in the…

Dad and daughter hope their awareness run sparks change

July 26, 2012

Trevor Lewis says he hopes the upcoming Run for Epilepsy he and his daughter, Katie, are organizing will help raise awareness about epilepsy in the community and possibly act as a catalyst for establishing an epilepsy agency in his hometown of Thunder Bay. Trevor notes that there’s a great need for more available resources for…