Category Archive

Advocacy

Hidden, not rare: Why Alex Johnson is using a sweater to raise epilepsy awareness

March 26, 2026

By Deron Hamel For Alex Johnson, the phrase “Epilepsy: Hidden, Not Rare” resonated with him when he saw it printed across a sweater at the Epilepsy Shop, Epilepsy Ontario’s online store. Alex, who is living with epilepsy, says he felt a personal connection with the message, which prompted him to buy the sweater. “The message…

Student using epilepsy experience to fuel advocacy and research

January 9, 2026

By Deron Hamel Vivienne Le says that if she could speak to her younger self, the first thing she would tell herself is that having epilepsy will not make her “less capable” or “less worthy.” The student from Ottawa, who is studying health sciences at Queen’s University, says when she was younger she felt “frustrated…