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Don’t let epilepsy eclipse your passions: Lia Turner

April 26, 2013

April 26, 2013 — Lia Turner has a message for others living with epilepsy: never let your seizure disorder dominate your life or keep you from pursuing your passions.

It’s a mantra that 16-year-old Turner lives by. Her passion is equestrianism, and she has never allowed epilepsy to prevent her from riding her horse, Echo.

Lia Turner is seen here riding her horse, Echo.
Lia Turner is seen here riding her horse, Echo.

“If you truly have a passion for horse-riding or skiing or whatever, keep that alive, because that’s what really helps me keep going when things are tough,” says Turner, who rides competitively.

“I can say that even though I have epilepsy, I am so passionate about horse-riding that it’s something that I just have to keep doing and not be too worried about.”

Turner, who began riding horses at age four, has never let her passion wane. It’s not that having epilepsy hasn’t affected her as a horseback rider — she’s had seizures while riding — it’s that she refuses to let her seizure disorder deter her.

And why should she? After all, she has the benefit of a riding partner who seemingly understands her condition and, without any kind of training, knows how to react when Turner has a seizure.

Her partner, of course, is Echo.

Last year Turner had a tonic-clonic seizure while riding. When Turner came out of the seizure, she was on the ground. Echo, it turns out, had stopped trotting as soon as the seizure began. The horse stood still until the episode was over and someone could safely move Turner to the ground.

“Every time after that she has been so good at standing and waiting for somebody else to come and help me and she doesn’t move until I am safe — and I never trained her to do that, it just worked out that way,” Turner says.

“It’s a big part of our bond as a team and how we compete — that bond is what really helps me in the time that I would have a seizure on her back and she needs to stand there.”

Not only does Turner refuse to let epilepsy interfere with her passion for equestrianism, she says her love of her horse and the sport gives her comfort over having a seizure disorder.

“Since I’ve had Echo, I’ve always considered riding her as my safe place to go,” she says.

Keep reading Voices of Epilepsy for related stories. An upcoming story will feature an interview with Susy Niles of Iron Horse Equestrian Centre in Burlington where Turner trains.

If you have feedback on this story, or have a story of your own that you would like to share, please contact the newsroom at 800-294-0051, ext. 23, or e-mail deron(at)axiomnews.ca. You can also leave a comment below.

Writer: Deron Hamel

* If you wish to reprint this story, please include following notice: “This story originally appeared on the Epilepsy Ontario website.”

Strong doctor relationships help ease Pamela-Anne Kinney off meds

April 18, 2013

April 18, 2013 — Pamela-Anne Kinney’s story of reducing the amount of her medication to control tonic-clonic seizures underscores the importance of people living with epilepsy having strong relationships with their doctors — and being advocates for their own health.

Pamela-Anne Kinney says reducing her medications has helped her get her life back.
Pamela-Anne Kinney says reducing her medications has helped her get her life back.

Kinney, 48, has been affected by seizures since she was 16, after being struck by a hit-and-run driver. Since then, the Kitchener, Ont. native has taken medications to control her seizures, but it wasn’t until she reduced her medication intake from 17 pills per day to two that she felt her quality of life improve.

How has changing her medication affected her life?

“I am not having any less seizures or any more, but I feel much better taking two pills a day, compared to 17,” Kinney says.

Having a doctor who listened to her concerns and helped wean her off the unnecessary medications another physician had prescribed helped give Kinney her life back. Before reducing her medication intake, Kinney says she felt like a “zombie.”

At one point in her journey, Kinney was down to seven pills per day, but still wasn’t feeling right. She went to see her family doctor to express her concerns that being on too many medications made her feel like her blood was poisoned. Her arms also felt extremely sensitive.

“I was lacking the correct medical terminology to express myself better, but my doctor had some blood work done to check things out,” Kinney recalls.

“She called me at home (at) about seven in the evening to tell me that I was right; that in a way my blood was poisoned because the anti-seizure meds I was taking were at toxic levels.”

Kinney has also made a point of keeping track of her seizures, which has helped keep her off medications. She began to notice patterns in her seizures — for example, they were higher during her menstrual cycle and when she lacked sleep or was stressed. She brought this to her neurologist’s attention. The neurologist thought the seizures during her cycle were caused by increased water pressure on her brain, so he prescribed Kinney water pills, which kept her seizure-free for two years.

While Kinney’s seizures have returned — water pills are not recommended for long-term use — she’s still feeling the benefits from taking fewer medications.

“I feel so much more alive today, compared to the time when I was a zombie,” she says.

“It has been a long journey to this point, but it has been well worth it. Who knows, maybe I will become totally drug-free, but if not that is OK too.”

If you have feedback on this story, or have a story of your own that you would like to share, please contact the newsroom at 800-294-0051, ext. 23, or e-mail deron(at)axiomnews.ca. You can also leave a comment below.

Writer: Deron Hamel

* If you wish to reprint this story, please include following notice: “This story originally appeared on the Epilepsy Ontario website.”

Freelance writer proving career goals can overcome epilepsy

April 11, 2013

Finding meaningful employment when you have an unpredictable seizure disorder can be challenging, but it’s an obstacle Pamela-Anne Kinney has overcome by pursuing her dream and harnessing her strengths as a storyteller.

Upon completing a freelance writing course in November 2011, Kinney embarked on a career that satisfies her love of writing while allowing her to work from home and be her own boss.

Pamela-Anne Kinney is proving epilepsy does not have to interfere with career ambitions.
Pamela-Anne Kinney is proving epilepsy does not have to interfere with career ambitions.

Kinney, who lives in Kitchener, Ont., says she long felt “frustrated” in her search for a career that met her ambitions and would not be affected by her epilepsy. She had several jobs before pursuing a writing career, but her seizure disorder was always an issue affecting her employment.

“The thing I find frustrating is never knowing when the next seizure is going to occur,” says Kinney.

“Freelance writing is a career that can work around my seizures. I can work from home and be able to work on my own schedule. I still have much to learn in this field but I am enjoying learning as I continue my journey towards becoming a successful writer. . . .

“I know there is life and happiness beyond the seizures and I’m reaching out to grab a piece of it.”

Kinney says she can’t pinpoint the moment when she decided to become a freelance writer, but the important thing others living with a seizure disorder should know is that success comes down to setting personal goals and sticking to them.

Anyone living with a seizure disorder needs to keep this top of mind, she says.

“Start with small goals that are within reach. Remember nothing worthwhile is ever easy to achieve, so if there is some bumps in the road along the way no worries; this is all part of life’s journey,” she says.

“Just keep moving forward towards your goal and eventually you will reach it.”

Eventually, Kinney says she aspires to work as a proposal writer for an organization like Epilepsy Ontario where she can utilize her writing talents with her first-hand knowledge of living with a disability.

Kinney admits her journey has hit a lot of bumps. Now 48, she had her first seizure when she was 16, after being struck by a hit-and-run driver. While Kinney lives with tonic-clonic seizures, she has never let them dominate her life. She lives by herself in an apartment, which she says surprises some people who are amazed she’s not “afraid” to live on her own.

“I explain that my epilepsy is part of my life but it does not totally control or run my life,” she says.

You can read more about Kinney’s story by clicking here.

If you have feedback on this story, or have a story of your own that you would like to share, please contact the newsroom at 800-294-0051, ext. 23, or e-mail deron(at)axiomnews.ca. You can also leave a comment below.

Writer: Deron Hamel

* If you wish to reprint this story, please include following notice: “This story originally appeared on the Epilepsy Ontario website.”

Enter essay for chance to win $1,000 for post-secondary education

April 5, 2013

Lawton Osler recalls reviewing the barely-legible cover letter followed by an impressive, typed essay.

The solid piece of writing earned the author a $1,000 scholarship towards his post-secondary education.

When the writer gathered with others who have epilepsy to accept the award, he was bald and had a scar on his head. Recovering from recent brain surgery, the young man had penned the cover letter with his left, non-dominant hand.

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OBCL president Lawton Osler (right) congratulates three students at the 2012 awards ceremony. Pictured from left to right are Rahman Mohamed, Jaimie Morgan-Lynette and Brooke Corner.

Osler has met many remarkable people since he began supporting students with epilepsy by funding the OBCL Scholarship Awards. Every year, up to 10 students across Ontario can win a $1,000 scholarship for their post-secondary education.

Epilepsy Ontario and Osler invite people between the ages of 16-29 to write an essay about living with epilepsy. The deadline for the 2013 OBCL Epilepsy Scholarships is May 1 at 5 p.m.

Osler, principal of Osler Business Consultants Ltd., has been supporting the scholarship since 2006.

He has a seizure disorder that is controlled by medication.

“It was a really opportunity to give back and that’s what I did,” Osler says about his motivation for lending his support.

His favourite aspect of being involved is seeing the recipients gather each year with their girlfriends, boyfriends, parents and in some cases, grandparents, for the awards ceremony.

“It’s absolutely amazing. They’re terrific, strong people.

“To see the enthusiasm of the candidate is definitely the best thing.”

Between 20-40 people apply annually for the scholarships. Osler encompasses excerpts from the essays in his speeches at the ceremony. Last year, a student wrote the following: “In everyone’s life there is something that plays a great role in developing their character, qualities, goals and future destination. For me it has been epilepsy.”

As part of their application package, students must submit a personal essay under a particular theme. Authors are invited to determine their own concept this year.

Click here to learn more about the 2013 OBCL Epilepsy Scholarships and to access the application form.

The awards ceremony is June 7 at KPMG, 4100 Yonge St., Toronto.

Writer: Natalie Hamilton

* If you wish to reprint this story, please include following notice: “This story originally appeared on the Epilepsy Ontario website.”