Category Archive

Voices of Epilepsy

Run supersedes expectations, organizer sees new possibilities

August 31, 2012

With more than 300 participants in the 2012 Run for Epilepsy in Thunder Bay, organizer Trevor Lewis says he hopes the success of the Aug. 19 event will be a catalyst for opening a support agency in Thunder Bay to assist northwestern Ontarians living with epilepsy. “I am hoping that (the run’s success) will serve…

Summerfest camp building independence and self-esteem

August 23, 2012

The best success stemming from Summerfest, Epilepsy Ontario’s annual camp program for children living with epilepsy, is that it has been creating independence and self-esteem for children and youth since 1994, says founder Anita Allen, neurology clinic nurse at Toronto’s Hospital for Sick Children (SickKids). For 18 years, Summerfest has seen an average of 20…

Golf tourney a chance to have fun, raise money for Summerfest

August 16, 2012

The eighth annual Richardson Charity Golf Tournament is a chance for people to have a fun day of playing golf while helping raise money for Summerfest, an annual opportunity for children and youth living with epilepsy to enjoy summer camp with appropriate nursing care. Held Aug. 24 at Ariss Valley Golf Club near Guelph, the…

Grassroots group to launch Dravet syndrome information website

August 9, 2012

A grassroots group of parents of children living with Dravet syndrome is working to form a Canadian branch of, a U.S.-based global collaboration of parents and medical experts dedicated to improving treatments for children with Dravet syndrome spectrum disorders and empowering families to cope with challenges. The parents, most of whom live in the…