Ten-month-old Kaitlyn Pogson is living with Dravet syndrome, a rare catastrophic form of intractable epilepsy that causes her to go into hour-long seizures every few days. When this happens, Kaitlyn must be rushed to hospital where she’s administered anti-seizure medication that has little impact and often produces side effects, such as reduced appetite. Her parents,…
This year’s Richardson Charity Golf Tournament will once again be an opportunity to help send children and youths living with epilepsy to summer camp, while having a fun day on the fairways and greens at Ariss Valley Golf Club near Guelph. All proceeds from the Aug. 24 event will support Summerfest, an annual summer…
Tracy Cummins admits to having reservations the first time her son, Tobin, went to Summerfest in 2011. After all, he was only eight years old, had never been away from home by himself and had never been to camp. Tracy had also always been the person who administered medicine for Tobin’s seizure disorder. Tobin’s time…
Trevor and Katie Lewis accomplished their goal of raising enough money to launch an epilepsy agency in Thunder Bay during last year’s inaugural Run for Epilepsy, and the father-and-daughter team is planning to direct proceeds from this year’s marathon to build upon that success. The 2012 Run for Epilepsy raised about $17,000, which helped open…
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