Category Archive

Voices of Epilepsy

Hidden, not rare: Why Alex Johnson is using a sweater to raise epilepsy awareness

March 26, 2026

By Deron Hamel For Alex Johnson, the phrase “Epilepsy: Hidden, Not Rare” resonated with him when he saw it printed across a sweater at the Epilepsy Shop, Epilepsy Ontario’s online store. Alex, who is living with epilepsy, says he felt a personal connection with the message, which prompted him to buy the sweater. “The message…

The 2026 #IAM1IN100 CAMPAIGN

February 24, 2026

  We are bringing back the #Iam1in100 campaign this March. Download the material below and help expand the representation of what it means to live with epilepsy. If you have epilepsy, download the sign that says “I have epilepsy and…” In the blank space provided, you can write about how you’re feeling or how you’re…

‘Epilepsy is just one part of my life,’ student says

February 9, 2026

By Deron Hamel “Don’t let your epilepsy control you; it’s just one part of your life.” Taylor Kepka says if she could write a letter to her younger self, this would be the opening sentence. Looking back, Taylor, now a university student, says when she experienced her first seizures she didn’t know what was happening,…