The best success stemming from Summerfest, Epilepsy Ontario’s annual camp program for children living with epilepsy, is that it has been creating independence and self-esteem for children and youth since 1994, says founder Anita Allen, neurology clinic nurse at Toronto’s Hospital for Sick Children (SickKids). For 18 years, Summerfest has seen an average of 20…
The eighth annual Richardson Charity Golf Tournament is a chance for people to have a fun day of playing golf while helping raise money for Summerfest, an annual opportunity for children and youth living with epilepsy to enjoy summer camp with appropriate nursing care. Held Aug. 24 at Ariss Valley Golf Club near Guelph, the…
A grassroots group of parents of children living with Dravet syndrome is working to form a Canadian branch of Dravet.org, a U.S.-based global collaboration of parents and medical experts dedicated to improving treatments for children with Dravet syndrome spectrum disorders and empowering families to cope with challenges. The parents, most of whom live in the…
Andreea-Oxana Kilin is trying to establish a service in the Ottawa region that would see her and a group of volunteers engage children living with epilepsy through a variety of outings and activities specially suited to meet the needs of those affected by the neurological disorder. Kilin, 29, has had epilepsy since she was 18.…
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