When a 20-year-old man living with complex seizure disorder was recently denied funding for new medication from the Ministry of Health and Long-Term Care’s Exceptional Access Program (EAP), after having a severe reaction to EAP-approved medication, he and his family lodged a complaint with Ontario’s ombudsman’s office. Once investigated by the ombudsman, it was discovered…
Gerry Cockburn says one of the greatest possibilities that could stem from a provincial epilepsy strategy would be a stronger sense of community created amongst people living with epilepsy and medical professionals who treat the neurological disorder. Cockburn, a 55-year-old retired educator, has had epilepsy since he was 10. He says one of the things…
While a provincial epilepsy strategy would help people affected by the neurological disorder access services in a timely manner, it would be especially beneficial to people living in northwestern Ontario, who often must travel long distances to receive treatment, says Trevor Lewis. Lewis and his 18-year-old daughter Katie live in Thunder Bay. They are both…
Given the high number of Ontarians living with epilepsy, there needs to be an effective action plan to support the quality of life of people affected by the neurological disorder, says Miranda Zeppieri. Zeppieri, 28, knows this first-hand — she has had a seizure disorder caused by tuberous sclerosis her whole life, and this is…
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