While a provincial epilepsy strategy would help people affected by the neurological disorder access services in a timely manner, it would be especially beneficial to people living in northwestern Ontario, who often must travel long distances to receive treatment, says Trevor Lewis. Lewis and his 18-year-old daughter Katie live in Thunder Bay. They are both…
Given the high number of Ontarians living with epilepsy, there needs to be an effective action plan to support the quality of life of people affected by the neurological disorder, says Miranda Zeppieri. Zeppieri, 28, knows this first-hand — she has had a seizure disorder caused by tuberous sclerosis her whole life, and this is…
Looking ahead into fiscal year 2012-13, Epilepsy Ontario needs to examine ways to deliver its strategy in a world that’s changing for nonprofit organizations. This was Epilepsy Ontario executive committee president Elisa McFarlane’s message at the organization’s May 29 annual general meeting. Of note, Epilepsy Ontario needs to be looking at four key trends —…
Asked to summarize Epilepsy Ontario’s past year, executive director Rozalyn Werner-Arcé doesn’t hesitate in her response: “It has been a year of change and productive initiative.” The executive director spoke at the organization’s May 29 annual general meeting (AGM), where she highlighted the successes and changes seen throughout 2011-12. Werner-Arcé began by paying tribute to…
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