Category Archive

Supporting Agencies (Canada & Ontario)

Community support Epilepsy Durham Region’s greatest success: executive director

November 1, 2012

  When you’re a small epilepsy support agency of two people, you need to know how to make the most of your available resources — and that’s exactly what Epilepsy Durham Region has done for 25 years. The agency receives no government or United Way funding. Instead, Epilepsy Durham Region has built community relationships to…

Epilepsy Halton Peel Hamilton aiming to raise $50K in marathon

October 9, 2012

About 130 people will be running under the Epilepsy Halton Peel Hamilton banner at the Oct. 14 Scotiabank Toronto Waterfront Marathon, an annual five- and 2.5-kilometer run that raises money for a myriad of charities. The agency is hoping the event will raise $50,000. Money raised will continue to support the programs, services, education and…

What people with seizure disorders should know about medication funding

September 6, 2012

When a 20-year-old man living with complex seizure disorder was recently denied funding for new medication from the Ministry of Health and Long-Term Care’s Exceptional Access Program (EAP), after having a severe reaction to EAP-approved medication, he and his family lodged a complaint with Ontario’s ombudsman’s office. Once investigated by the ombudsman, it was discovered…

Provincial strategy could create a stronger epilepsy community

July 20, 2012

Gerry Cockburn says one of the greatest possibilities that could stem from a provincial epilepsy strategy would be a stronger sense of community created amongst people living with epilepsy and medical professionals who treat the neurological disorder. Cockburn, a 55-year-old retired educator, has had epilepsy since he was 10. He says one of the things…