In January, Voices of Epilepsy spoke with 45-year-old Peterborough resident Kerry Jenkins, who had lived with epilepsy since age seven. She shared her story of how deep brain stimulation (DBS) surgery cut her seizures in half and eliminated her tonic-clonic seizures. The surgery continues to improve her quality of life. Today, Jenkins says that 75…
Philippa Howell says attending Summerfest for four years has helped her daughter, Georgina, enhance her social skills and build self-confidence while enjoying a summer camp experience at Camp Couchiching near Orillia. Georgina, 12, is living with intractable myoclonic epilepsy as well as autism. She has been attending the camp since she was eight, and Philippa…
It was the summer of 2012 and Elizabeth Paley was at a camp with two friends. She was expecting to have a fun time, but things changed. “Little did any of us know,” she says, “that this enjoyable weekend would turn surreal in a matter of minutes.” The first morning she was at camp Elizabeth…
Dravet.ca, a grassroots organization of family members, friends and caregivers of people living with a Dravet spectrum disorder, is gearing up for a family retreat it’s organizing Sept. 12-14 at Circle Square Ranch in Brantford. The event will be an “excellent opportunity” for families of people living with Dravet syndrome or a Dravet spectrum disorder…
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