It was the summer of 2012 and Elizabeth Paley was at a camp with two friends. She was expecting to have a fun time, but things changed. “Little did any of us know,” she says, “that this enjoyable weekend would turn surreal in a matter of minutes.” The first morning she was at camp Elizabeth…
Dravet.ca, a grassroots organization of family members, friends and caregivers of people living with a Dravet spectrum disorder, is gearing up for a family retreat it’s organizing Sept. 12-14 at Circle Square Ranch in Brantford. The event will be an “excellent opportunity” for families of people living with Dravet syndrome or a Dravet spectrum disorder…
Seventeen-year-old Lia Turner was diagnosed with epilepsy seven years ago. Although living with a seizure disorder has had an impact on her life, it has never stopped her from pursuing her passions and dreams. In fact, living with epilepsy has inspired Lia, who recently graduated from Aldershot High School in Burlington, to make a career…
People concerned about medication shortages are encouraged to participate in a public consultation that’s open until July 5 to provide Health Canada with feedback about this issue and to assess current approaches. During the past five years there have been frequent drug shortages in Canada, including multiple shortages of epilepsy medications. Epilepsy Ontario wants to…
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