An upcoming three-day conference near Chicago in June will bring people representing clinical, basic science and patient/family communities together to get important information related to sudden unexpected death in epilepsy (SUDEP). “We’re trying to bring those three groups together to participate in a meeting that will still be high-level academic with some very high-level basic…
An e-toolkit containing the latest research-based material aimed at providing information about sudden unexpected death in epilepsy (SUDEP) to four main target groups is now available online. The e-toolkit, which is available on SUDEP Aware’s website, contains key information pamphlets targeting health-care providers, people bereaved by SUDEP, teens and young adults, and people with epilepsy.…
People affected by epilepsy who need answers to their questions can turn to Suzanne Nurse, who is an excellent information resource and who has a myriad of experience working with people who have epilepsy. Nurse, Epilepsy Ontario’s new epilepsy information specialist, also holds a PhD in medicine with specialization in neuroscience. Through her new role,…
In the fall of 2011, 671 Canadians across the country participated in a survey entitled The Impact of Epilepsy on Canadians. Leger Marketing conducted the survey in both official languages. This is the first of its kind in Canada to explore the impact on life and health among adults living with the disorder. The findings…
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