Author Archives: Trevor Gordon

STATEMENT ON REGIS KORCHINSKI-PAQUET

May 29, 2020

We have been informed through the media that Claudette Beals-Clayton, the mother of Regis Korchinski-Paquet, may have called the police for assistance for reasons related to epilepsy and mental health.

Epilepsy is a complex neurological condition characterized by recurrent seizures. Epilepsy can impact an individual’s actual or perceived mental health in a variety of ways. Without more specific information from Ms. Korchinski-Paquet’s family about her diagnosis and treatment we cannot provide additional context about what, if any, role epilepsy and mental health may have had in this tragedy.

We want to express our deepest sympathies to Claudette Beals-Clayton, and her entire family, on the death of her daughter and offer any assistance we can provide them during this difficult time.

COVID-19 – Potential Drug Shortage Information

April 17, 2020

Many people are concerned about the possibility of drug shortages in the future and the drug shortages database (drugshortagescanada.ca) is being closely monitored. Epilepsy Ontario and other community epilepsy agencies are working with the Canadian Epilepsy Alliance and other partners to help put a response plan in place in case a shortage occurs in the future.

Here is some useful information about what is happening to prevent shortages and how to respond if they do occur in the future.

30-Day Refills
Pharmacies have begun limiting medication refills to 30-days. This is being done to help PREVENT shortages from happening. By making sure that people aren’t getting refills that are larger than what they really need, 30-day refills help make sure that everyone can continue getting their medication without any problems and prevents stockpiling that might accidentally cause a shortage.

The Drug Shortage Database
The drug shortage database is a helpful tool for monitoring the drug supply. However, drugs can appear on the database for many reasons and simply because a drug is listed does not mean it is unavailable to patients. Some database listings are for only a very short period of time; others can be for a long-time but only affect one supplier. In fact, over the last few years, there have been about 30 epilepsy drugs listed on the database at any time, but those drugs are still available to patients.

Epilepsy Ontario staff are monitoring the database for signs of more significant shortages, such as when the same drug is listed by multiple producers. If that happens, local community epilepsy agencies will be alerted.

If You Can’t Get A Refill…
If you can’t get a refill from your usual pharmacy, start by asking your pharmacist some questions:

• Are you able to get a 30-day refill, even if that is smaller than your normal refill?

• If you can’t get a 30-day refill, is there another nearby store in their chain that can fill your prescription?

• Do they know when they will be able to fill your prescription?

If your regular pharmacist can’t fill your prescription, try a local pharmacy from a different chain.

If you’ve tried 2 different pharmacies and still can’t fill your prescription, let your local Community Epilepsy Agency know.

Remember, never skip doses or adjust your dosage without consulting the doctor who prescribed the medication.

#IAM1IN100 CAMPAIGN

February 24, 2020

 

We are launching the #Iam1in100 campaign in March 2020. Download the material below and help expand the representation of what it means to live with epilepsy.

If you have epilepsy, download the sign that says “I have epilepsy and…” In the blank space provided, you can write about how you’re feeling or how you’re handling having epilepsy. You can also write about your hobbies, interests, skills, and life beyond epilepsy.

If you know someone with epilepsy, download the sign that says “Someone I care about has epilepsy and…” In the blank space provided, you can write about their hobbies, interests, skills, and life beyond epilepsy.

The campaign highlights the range of experiences of living with epilepsy and that people with epilepsy are more than just their epilepsy.

 

 

 

Here’s how you can participate

Download and print a sign
Fill in the blank space
Take a photo while holding the sign
Upload your photo to social media using #Iam1in100 (for people with epilepsy) and #1in100.
Feel free to tag us @epilepsyontario on Twitter & Instagram & Facebook or use the hashtag #epilepsyontario

Material

 

English
“I have epilepsy and” sign (8.5″x11″)
“Someone I care about has epilepsy and” sign (8.5″x11″)
Small poster (8.5″x11″)
Large poster (11″x17″)

Français
«J’ai l’épilepsie et”» tableaux (8.5 x 11 po)
«Une personne qui me tient à coeur souffre d’épilepsie et» (8.5 x 11 po)
Petite affiche (8.5 x 11 po)
Grande affiche (11 x 17 po)