Author Archives: DHamel

Renowned crime author inspires student with epilepsy to focus on her dreams

April 8, 2024

By Deron Hamel

 

Lyndsey Canini, pictured above, is one of six recipients of Epilepsy Ontario’s 2023 annual scholarship.

While recovering from a tonic-clonic seizure, Lyndsey Canini says she found inspiration and motivation to continue pursuing her studies in creative writing and criminology after learning about the life of one of the world’s most celebrated authors.

 

At the time, the University of Ottawa student says she had been released from hospital and was worried about how epilepsy might impact her future when she learned that one of her favourite authors, Agatha Christie, also lived with a seizure disorder.

Lyndsey says she has always dreamed of becoming an author, but after experiencing her first tonic-clonic seizure, she was concerned that would not be possible.

But researching the life of the author often called “the Queen of Crime” changed everything, Lyndsey says.

“(I was) previously stunned by her mastery of suspense novels, my favourite genre, (but) my connection to her deepened upon discovering we had a unique paralleled experience,” Lyndsey says.

“Suddenly, my dreams felt more closely tethered to reality.”

Although Lyndsey has had seizures and more hospital visits since experiencing what she calls her “pivotal moment” of learning about the similarities she shares with the famous crime writer, she says her dreams “have never been more firmly planted.”

Lyndsey was able to complete last year’s studies with straight A’s and returned to the University of Ottawa in the fall to continue her education.

“Epileptic contemporaries, such as my role model and writing inspiration, Agatha Christie, have taught me that you cannot succumb to your disability,” Lyndsey says.

“The only one with a hand in your future is you, and I am ready to hold on tight and see where my words can carry me.”

Asked what impact she hopes to have on others living with epilepsy, Lindsey says she would like to help make epilepsy education more prevalent in schools.

“Seizures and epilepsy were never something that came up in my educational career, and since no one around me dealt with seizures, I knew virtually nothing about epilepsy until I was diagnosed,” she says.

“I’d propose a form of epilepsy education to be implemented into health classes for kids of all grades, following various formats to best adhere to the comprehensive ability of the age group. Be it through picture books, short stories, infographics, or research projects, I would like to help develop a curriculum that integrates this knowledge into our Ontario school systems.”

Lyndsey is one of six recipients of Epilepsy Ontario’s 2023 annual scholarship. For more than 15 years, Epilepsy Ontario has been providing scholarships to exceptional students who have confronted and overcome remarkable barriers in their academic and personal lives due to their epilepsy.

How a positive attitude helped student overcome epilepsy challenges

March 4, 2024

By Deron Hamel

Amber Demers recalls the first time she experienced a seizure – it was in 2007, the day before classes began when she was a first-year university student.

Amber Demers holds the cheque she received after being awarded an Epilepsy Ontario Scholarship.

Shortly after, she was diagnosed with epilepsy. Simultaneously, Amber found herself facing two new challenges: living with a seizure disorder and dealing with a full-time university class schedule.

“Not only was I terrified of my next adventure of navigating the world of post-secondary education, I was now facing this new adventure with an epilepsy diagnosis filled with fear and uncertainty,” she says.

At the time, Amber says her neurologist and family doctor could not understand what was causing her seizures. What Amber describes as her “seizure-control journey” started with her testing new medications and her doctors trying to understand what was triggering her seizures.

“This was all done while maintaining a full-time course load in university, attending all my classes and completing all of my assignments,” Amber says.

“This was not an easy task – especially while trying to understand my triggers.”

At this point, Amber says she needed to put supports in place to help her get through university while maintaining a low stress level, despite repeated seizures.

She began working to understand her epilepsy so she could continue living a successful life while limiting epilepsy’s impact.

“This led me to the development of a positive attitude,” Amber says. “There was no way I could handle all of these obstacles without this. I focused on the positives in my life and positive steps to continuously move forward.”

Amber has also found that involving herself in the epilepsy community has helped her cope with her condition.

Since 2012 she has been involved with Epilepsy Niagara in various capacities including serving as a board member, volunteering and being on the events committee. Most recently, she became president of the agency’s board of directors.

“As the board president, my goal has been community outreach and determining how the agency can provide support services to those living in Niagara,” she says.

“Events are crucial to Epilepsy Niagara, as (they) assist with providing awareness about epilepsy, informing members of the community and allowing for fundraising efforts to increase the amount of support that Epilepsy Niagara can provide.”

Amber is one of six recipients of Epilepsy Ontario’s 2023 annual scholarship. For more than 15 years, Epilepsy Ontario has been providing scholarships to exceptional students who have confronted and overcome remarkable barriers in their academic and personal lives due to their epilepsy.

Epilepsy has been no match for student’s inner strength

January 10, 2024

By Deron Hamel

Angélique Erry recalls how when she was diagnosed with epilepsy at 13, she felt the condition would be a barrier that would prevent her from living life to its fullest.

Angélique Erry holds the cheque she was awarded as an Epilepsy Ontario Scholarship winner. Angélique is studying life sciences at the University of Toronto.

She remembers her doctor giving her a list of activities she needed to avoid, telling her how many hours of sleep she needed each night and advising her to not partake in activities people her age enjoyed – like school trips and sleepovers.

“It seemed like my disorder was in control of my entire life,” Angélique says. “I felt hopeless, withdrawn and fearful.”

However, as time passed, Angélique says she found the strength to view epilepsy as a challenge she could overcome.

She educated herself and those around her about epilepsy and this allowed her to feel more comfortable around friends and family. She also adjusted her schedule to ensure she would get to sleep earlier and found ways to work around the activities she couldn’t do.

“I found solutions to every restriction I was given and didn’t let epilepsy stop me from doing what I love,” Angélique says.

“Epilepsy helped me strengthen my resilience and perseverance. I’ve applied this to my everyday life – in and out of academics as well. I take on challenges with determination and an open mind without immediately feeling helpless.”

By tapping into her inner strength, Angélique has accomplished the goals she has set for herself. She graduated high school with a 94 per cent average, was active in her school band and has been recognized for her volunteer work. Today, she is enrolled in the life sciences program at the University of Toronto.

Angélique is one of six recipients of Epilepsy Ontario’s 2023 annual scholarship. For more than 15 years, Epilepsy Ontario has been providing scholarships to exceptional students who have confronted and overcome remarkable barriers in their academic and personal lives due to their epilepsy.

Asked what message she has for others living with epilepsy, Angélique says it’s to urge people to share their experiences with epilepsy and how they have overcome obstacles. These stories, she says, can provide a road map to help others living with epilepsy manage the condition.

What’s important for everyone living with epilepsy to realize is that the condition does not define who they are, she says.

“(Epilepsy) will always be an obstacle, but I came to realize that life doesn’t end the day you get diagnosed with epilepsy; it just gets reformed,” she says.

“It becomes a challenge you need to learn and grow from. I am still pursuing my dreams, as I remain resilient and maintain a growth mindset.”

Negative workplace experience prompts scholarship recipient to set sights on helping others

December 7, 2023

By Deron Hamel

Luke Jan was 27 and working an office job in the private sector when he was diagnosed with epilepsy. The lack of accommodation Luke received from his employer following his diagnosis had a profound impact on him and would steer his career path in a new direction.

Pictured above, York University student Luke Jan holds his scholarship cheque

At the time, Luke decided to work with his neurologist to minimize his seizures through medication. This helped Luke complete his work assignments and demonstrate to the company that epilepsy was not interfering with his ability to be a productive employee, he says.

This, Luke adds, was a testament to his “resilience and strength as a person living with epilepsy.”

Knowing this working environment was not sustainable in the long term, Luke set his sights on finding a new job with an employer who would be more supportive. He eventually found that with a position in the public sector.

“I refuse to let others’ ignorant or misinformed perceptions or ideas of me negatively limit me,” Luke tells Voices of Epilepsy.

“(This) led me to my current position, working in the Ontario public sector in a role that works directly with offices overseeing the launch of and implementation of programs directly related to the Accessibility for Ontarians with Disabilities Act (AODA).”

Luke is one of six recipients of Epilepsy Ontario’s 2023 annual scholarship. For more than 15 years, Epilepsy Ontario has been providing scholarships to exceptional students who have confronted and overcome remarkable barriers in their academic and personal lives due to their epilepsy.

Luke is pursuing a master’s degree in the public policy, administration and law (MPPAL) program at York University. He’s planning to use the knowledge and skills he’s gaining through the program to better advocate for people living with epilepsy.

Eventually, Luke says he would like to use his experience and education to assist provincial ministries in supporting epilepsy organizations and people that support those living with epilepsy.

“I made the choice to control my future by advocating for other people living with epilepsy,” he says.