Courtney Tobin’s life changed forever on May 19, 2012. It was the day her 23-year-old sister, Chelsea, passed away from sudden unexplained death in epilepsy (SUDEP). It was just before Chelsea was to graduate with a master’s degree from the State University of New York at Potsdam. While Courtney, a Kingston, Ont. native, says the…
This past Purple Day, March 26, Duncan Green did something he’d never done before — he publicly shared his experience with epilepsy. In a classroom in front of his fellow students at Sinclair Secondary School in Whitby, the Grade 12 student spoke about what it was like to live with epilepsy. Most importantly, he described…
Philippa Howell says attending Summerfest for four years has helped her daughter, Georgina, enhance her social skills and build self-confidence while enjoying a summer camp experience at Camp Couchiching near Orillia. Georgina, 12, is living with intractable myoclonic epilepsy as well as autism. She has been attending the camp since she was eight, and Philippa…
Epilepsy Ontario is inviting adults living with epilepsy, or caregivers of people living with the condition, to participate in a survey about their experiences with epilepsy as well as treatments for seizures.The main purpose of the survey is to gather evidence from the group that is the most knowledgeable about the day-to-day reality of epilepsy…
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