Philippa Howell says attending Summerfest for four years has helped her daughter, Georgina, enhance her social skills and build self-confidence while enjoying a summer camp experience at Camp Couchiching near Orillia. Georgina, 12, is living with intractable myoclonic epilepsy as well as autism. She has been attending the camp since she was eight, and Philippa…
Epilepsy Ontario is inviting adults living with epilepsy, or caregivers of people living with the condition, to participate in a survey about their experiences with epilepsy as well as treatments for seizures.The main purpose of the survey is to gather evidence from the group that is the most knowledgeable about the day-to-day reality of epilepsy…
Epilepsy Ontario has launched a crowdsourcing initiative to raise money in support of epilepsy awareness, and those who donate will have their name seen by millions of people. Through the crowdsourcing site Giveffect, the organization is aiming to raise $5,000 during the 13th annual Targa Newfoundland, a five-day, 2,200-kilometre road rally held Sept. 14-19 across…
Dravet.ca, a grassroots organization of family members, friends and caregivers of people living with a Dravet spectrum disorder, is gearing up for a family retreat it’s organizing Sept. 12-14 at Circle Square Ranch in Brantford. The event will be an “excellent opportunity” for families of people living with Dravet syndrome or a Dravet spectrum disorder…
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