A grassroots group of parents of children living with Dravet syndrome is working to form a Canadian branch of Dravet.org, a U.S.-based global collaboration of parents and medical experts dedicated to improving treatments for children with Dravet syndrome spectrum disorders and empowering families to cope with challenges. The parents, most of whom live in the…
Andreea-Oxana Kilin is trying to establish a service in the Ottawa region that would see her and a group of volunteers engage children living with epilepsy through a variety of outings and activities specially suited to meet the needs of those affected by the neurological disorder. Kilin, 29, has had epilepsy since she was 18.…
Gerry Cockburn says one of the greatest possibilities that could stem from a provincial epilepsy strategy would be a stronger sense of community created amongst people living with epilepsy and medical professionals who treat the neurological disorder. Cockburn, a 55-year-old retired educator, has had epilepsy since he was 10. He says one of the things…
While a provincial epilepsy strategy would help people affected by the neurological disorder access services in a timely manner, it would be especially beneficial to people living in northwestern Ontario, who often must travel long distances to receive treatment, says Trevor Lewis. Lewis and his 18-year-old daughter Katie live in Thunder Bay. They are both…
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