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Sharing stories of epilepsy helps empower others

November 26, 2015

By Deron Hamel When people share their stories about living with epilepsy it often inspires others to do the same. This not only helps build a stronger community among those living with epilepsy, but many of these stories also provide hope to those living with seizure disorders. Steve Rutledge contacted Epilepsy Ontario in February to…

2,000% price hike on infantile spasms medication ‘predatory behaviour’: Neurologist

September 24, 2015

By Deron Hamel A 2,000-per-cent price hike on a medication to treat infantile spasms is “predatory behaviour” on the part of Questcor Pharmaceuticals, and drug companies could hike prices on other seizure medications if policies aren’t put into place, says pediatric neurologist Dr. Carter Snead. Infantile spasms – also called West syndrome – is a…

Tongue-choking and other epilepsy myths debunked

September 17, 2015

By Deron Hamel This week’s edition of Voices of Epilepsy looks at some of the common myths about seizure disorders and helps set the record straight on everything from how to react when a person is having a seizure to how epilepsy affects a person’s ability to hold a driver’s licence. One of the most…

WHO passing epilepsy-care resolution a ‘huge’ step towards closing treatment gap

September 10, 2015

By Deron Hamel A World Health Organization (WHO) resolution that was unanimously passed earlier this year could create large-scale, positive change in epilepsy treatment across the globe, says Mary Secco, an Ontario advocate for people with epilepsy. Secco, who is co-chair of the International League Against Epilepsy’s (ILAE’s) Global Outreach Task Force as well as…