By Deron Hamel At Toronto Western Hospital, Kerry Jenkins is known as the “walking textbook on epilepsy.” Given her incredible story of perseverance, her doctors, as well as people at Epilepsy Toronto, have suggested Jenkins write a book about her struggle with epilepsy and the strides she has gained. Now 47 and living in Peterborough,…
By Deron Hamel Although a multifaceted effort is underway to end a severe shortage of divalproex sodium (Epival), a commonly used anti-seizure drug, the anxiety created by the limited amount of the lifesaving medication lingers, says Lynda Bowyer. Bowyer, whose 21-year-old daughter takes Epival to control her seizures, says this is the first time her…
By Deron Hamel Epilepsy Ontario is embarking on an outreach strategy with first responders to build relationships between epilepsy support agencies and police, firefighters and paramedic teams to create training opportunities and encourage appropriate responses to people who may have had a seizure. The first step in this process is gathering people’s stories – both…
By Deron Hamel Tina Smith has seen the negative impact seizure medication shortages have on people living with epilepsy and their families – she and her son, Nicholas, have lived through it more than once. Fifteen-year-old Nicholas had his first tonic-clonic seizure at seven. In 2009, Nicholas was diagnosed with epilepsy. During the next several…
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