Sometimes you can feel alone when your child is living with a seizure disorder, but when you meet others going through the same issues and challenges as your family, the burden can feel a little lighter. This is the experience Andy and Dawn Bellefeuille say they walked away with from Dravet.org’s recent 2012 biennial conference…
When a 20-year-old man living with complex seizure disorder was recently denied funding for new medication from the Ministry of Health and Long-Term Care’s Exceptional Access Program (EAP), after having a severe reaction to EAP-approved medication, he and his family lodged a complaint with Ontario’s ombudsman’s office. Once investigated by the ombudsman, it was discovered…
Trevor Lewis says he hopes the upcoming Run for Epilepsy he and his daughter, Katie, are organizing will help raise awareness about epilepsy in the community and possibly act as a catalyst for establishing an epilepsy agency in his hometown of Thunder Bay. Trevor notes that there’s a great need for more available resources for…
Gerry Cockburn says one of the greatest possibilities that could stem from a provincial epilepsy strategy would be a stronger sense of community created amongst people living with epilepsy and medical professionals who treat the neurological disorder. Cockburn, a 55-year-old retired educator, has had epilepsy since he was 10. He says one of the things…
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