Category Archive

Voices of Epilepsy

Mother credits Summerfest Camp for daughter’s enhanced confidence and independence

October 1, 2015

By Deron Hamel Enhanced confidence, independence and making friends – these are the main benefits Philippa Howell says her daughter, Georgina, has garnered since she started attending Summerfest Camp five years ago. Georgina, 13, is living with intractable myoclonic epilepsy as well as autism. She has been attending the camp since she was eight. In…

2,000% price hike on infantile spasms medication ‘predatory behaviour’: Neurologist

September 24, 2015

By Deron Hamel A 2,000-per-cent price hike on a medication to treat infantile spasms is “predatory behaviour” on the part of Questcor Pharmaceuticals and drug companies could hike prices on other seizure medications if policies aren’t put into place, says pediatric neurologist Dr. Carter Snead. Infantile spasms – also called West syndrome – is a…

Tongue-choking and other epilepsy myths debunked

September 17, 2015

By Deron Hamel This week’s edition of Voices of Epilepsy looks at some of the common myths about seizure disorders and helps set the record straight on everything from how to react when a person is having a seizure to how epilepsy affects a person’s ability to hold a driver’s licence. One of the most…

WHO passing epilepsy-care resolution a ‘huge’ step towards closing treatment gap

September 10, 2015

By Deron Hamel A World Health Organization (WHO) resolution that was unanimously passed earlier this year could create large-scale, positive change in epilepsy treatment across the globe, says Mary Secco, an Ontario advocate for people with epilepsy. Secco, who is co-chair of the International League Against Epilepsy’s (ILAE’s) Global Outreach Task Force as well as…