The creators of a 3-½-minute YouTube video filmed during Epilepsy Ontario’s screening of a documentary about seizure disorders were so taken by people’s stories about living with epilepsy that they’ve volunteered to take on another project centred on one of the people who spoke at the event. Editorial director Todd Phillips says he and his…
By Deron Hamel Dr. Berge Minassian says he believes scientists are “getting quite close” to finding a cure for Lafora disease, characterized as the most serious form of epilepsy, with inroads made possible by the Ontario Brain Institute’s (OBI’s) EpLink research program. Minassian is one of more than 25 researchers at nine university and hospital…
For Deb Fawcett, a special moment will happen on July 28. After bicycling more than 500 kilometres, she will complete the six-day Cycle for Olly that will take her and three other cyclists from Montreal to Toronto to raise awareness about sudden unexpected death in epilepsy (SUDEP). Her 15-year-old daughter, Jordan, passed away from SUDEP…
When we think of people who advocate for children who are living with epilepsy, we often think of mothers, but in many cases fathers are the unsung heroes when it comes to peer networking and searching for ways to enhance their children’s quality of life. In recognition of June 16 being Father’s Day, Voices of…
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