Sometimes you can feel alone when your child is living with a seizure disorder, but when you meet others going through the same issues and challenges as your family, the burden can feel a little lighter. This is the experience Andy and Dawn Bellefeuille say they walked away with from Dravet.org’s recent 2012 biennial conference…
Epilepsy Durham Region executive director Dianne McKenzie says the agency’s Sept. 29 Pull Together for Epilepsy event carries great symbolism, that of a community coming together, standing side by side in support of people living with epilepsy. Held in conjunction with Clarington’s Family Safety Day, an annual event featuring several interactive exhibits focused on public…
When a 20-year-old man living with complex seizure disorder was recently denied funding for new medication from the Ministry of Health and Long-Term Care’s Exceptional Access Program (EAP), after having a severe reaction to EAP-approved medication, he and his family lodged a complaint with Ontario’s ombudsman’s office. Once investigated by the ombudsman, it was discovered…
With more than 300 participants in the 2012 Run for Epilepsy in Thunder Bay, organizer Trevor Lewis says he hopes the success of the Aug. 19 event will be a catalyst for opening a support agency in Thunder Bay to assist northwestern Ontarians living with epilepsy. “I am hoping that (the run’s success) will serve…
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