No two experiences with epilepsy are identical; people require different needs to different degrees. There are many resources you may be able to access in Ontario if you or someone you care about requires more support than others. Whether it’s with direct care, medication, travelling around, or all of the above, there are programs that can help people living with epilepsy get what they need, and get where they need to go.
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General Health Services, Programs, and Tools
Assistive Devices Program:Expand Assistive Devices Program: Section
Who is Eligible?
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- You must be an Ontario resident with a valid OHIP card
- You must have a physical disability of six months or longer
- Your equipment must be required for your general life (meaning not just sports, work, or school)
How to Apply
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- Obtain your diagnosis from your specialist or practitioner
- Contact a registered authorizer (you may find them in hospitals, home care agencies, or private practices) who can assess your specific needs and prescribe the right equipment
- Get in touch with a vendor who can sell the necessary supplies to you*
- * Note that the ADP will only help pay for equipment that is purchased from vendors registered with the program. You can look up registered vendors, by category of device, here.
What else?
You can refer to the ADP webpage for more information.
Community Care Access Centre:Expand Community Care Access Centre: Section
Who is Eligible?
How to Apply
What else
For more information, you can visit the CCAC website.
Respite Services:Expand Respite Services: Section
Who is Eligible?
How to Apply
What else?
For more information, you can visit the Respite Services website.
Ontario Drug Benefit Program:Expand Ontario Drug Benefit Program: Section
Who is Eligible?
a) An accredited Ontario pharmacy OR
b) An Ontario doctor who is licensed to sell prescription drug products and is linked to the Ontario Ministry’s Health Network System
You are eligible for benefits from this program if you live in Ontario, have a valid OHIP card, and at least ONE of these statements applies to you:
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- You are 65 or older
- You live in a long-term care home or home for special care
- You are enrolled in the Home Care Program
- You have high drug costs relative to your income and you are registered in Trillium Drug Program
- You receive social assistance through Ontario Works or the Ontario Disability Support Program
How to Apply
If you’re a senior: On the first day of the month after you turn 65, bring your prescription and health card to your pharmacy. Tell your pharmacist that you are eligible for the ODB program.
If your drug costs are high relative to your income: You will need to complete a Trillium Drug Program application for Ontario Drug Benefits (see below).
If you live in a Long-Term Care Home or a Home for Special Care, or you’re enrolled in the Home Care System: Talk to your Community Care Access Centre representative.
If you receive social assistance: Talk to your Ministry of community and Social Services case worker.
What else?
3,800 prescriptions drugs is a lot – but the ODB does not include every drug out there. For all others, the Exceptional Access Program may cover additional drug products that are not on the ODB list.
It may be important to note that prescriptions drugs bought outside of Ontario, prescriptions bought at a doctor’s office that is not linked to the Ministry’s Health Network system, and supplies (e.g., syringes) are not covered by the ODB program.
For more information, you can visit the ODB Program website.
Trillium Drug Program:Expand Trillium Drug Program: Section
Who is Eligible?
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- A senior over 65
- Someone who receives financial help through Ontario Works or the Ontario Disability Support Program
- A resident in a long-term care home or Home for Special care OR
- Someone who receives Home Care Services
How to Apply?
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- Asking your local pharmacy
- By calling 1-800-575-5386
- Downloading the Application for Ontario Drug Benefits and A Guide to Your Application
What else?
Passport Program:Expand Passport Program: Section
Who is eligible?
- He/she must be 18 years or older
- He/she must need support to participate in the community while they are in school, OR
- He/she must have left school and are living with family or independently in a supportive living arrangement (e.g., a group home)
The caregiver of a person with a disability may also be eligible for funding for the purposes of paying others to temporarily support their loved one.
How to apply
What else?
Passport funding can be used for education (e.g., recreational programs, classes at a community centre, but NOT tuition), job preparation activities, volunteer activities, and several others. For a more detailed list you can refer to the Passport tip sheet.
When you apply, keep in mind that there is an extensive wait list to go through. If you need money immediately you might want to try going to Ontario Works. During this time you’ll also need to inform DSO of any changes to names, address, phone number(s), supports, needs, and living arrangements.
Once funding is available, the family or individual can:
- Receive and manage funds directly
- Receive funds directly and use up to 10% of their total approved allocation
- Access funded services through an existing developmental services agency
For more information you can visit the DSO or the Passport website.
Northern Health Travel Grant Program:Expand Northern Health Travel Grant Program: Section
Please note: you must get an application for the program from the professional who is referring you BEFORE you travel.
Who is Eligible?
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- You are OHIP insured on the date of your treatment and your primary residence is in the district of Algoma, Cochrane, Kenora, Manitoulin, Nipissing, Parry Sound, Rainy River, Sudbury, Timiskaming or Thunder Bay
- The medical specialist or health care facility-based service you were referred to is under the Health Insurance Act
- A northern physician, dentist, optometrist, chiropractor, midwife, or nurse practitioner has referred you before travel takes place
- You are referred to one of the following:
- A medical specialist who is certified by the Royal College of Physicians and Surgeons of Canada
- A Winnipeg (Manitoba) physician enrolled in the Manitoba Health Specialist register who is permitted to bill as a specialist
- A physician who holds a specialist certificate of registration from the College of Physicians and Surgeons of Ontario in a recognized medical/surgical speciality other than family/general practice
- The nearest specialist/designated health care facility able to provide the type of care required in Ontario or Manitoba is at least 100 km from where you live
How to Apply
What else?
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- For travel, approved grants are paid at $0.41/km based on return road distance travel between your home and your destination. There is a deductible of 100km on your trip (meaning you must pay for 100km yourself)
- Example: You need to travel 150 km one-way (300 km two-way).
- The deductible is 100 km, so 200 km will be paid for by the NHTG (300 km – 100 km)
- 200 km x 0.41 = $82.00
- Example: You need to travel 150 km one-way (300 km two-way).
- For accommodation, the program gives an allowance of $100 for each eligible treatment trip. You must submit a receipt of your expense.
- For travel, approved grants are paid at $0.41/km based on return road distance travel between your home and your destination. There is a deductible of 100km on your trip (meaning you must pay for 100km yourself)
Some things to keep note of:
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- Costs such as meals and other expenses other than travel and accommodation will not be covered by this program
- Receipts/itineraries are required if you travel by air, train, or bus (but nothing is needed if you go by personal vehicle)
For further details, you can visit the NHTGP website.
Travelling far for medical reasons:Expand Travelling far for medical reasons: Section
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- Residents in Northern Ontario may be eligible for financial support with accommodation and travel costs under the Northern Health Travel Grant (see above)
- Most hospitals will have information about nearby accommodations on the hospital website: try searching for “accommodations”
- The Patient Relations office or Family Resource office at the hospital should have additional information about local accommodations, and can answer questions you may have – find the extension online, or call the main number and ask the switchboard to redirect you
- The hospital may also have a Patient Handbook on their website, or they could be able to send you one
- When booking a room at a hotel/motel – be sure to ask if there is a hospital rate for people travelling for medical reasons
- Local service clubs or church groups may provide financial help to people and families who have to travel for medical reasons. Contact your local Lions Club or Rotary Club, local church groups or other community groups for more information.
- You may be able to claim travel expenses on your income taxes for a tax credit. If you plan to do so, keep a few things in mind:
- Keep a log of any medical appointments – the date, type of appointment and distance traveled
- Keep receipts for public transit, gas, parking, meals and accommodations
- For more information visit the Canadian Revenue Agency website
- If you need help with accommodations or travel, ask your doctor for a referral to a social worker at the hospital.
Quick links:
Accommodations near the University Health Network, Toronto – Toronto General, Toronto Western, Princess Margaret, and Toronto Rehab: Click Here
Accommodations near Sick Kids Hospital, Toronto: Click Here
Accommodations near St. Joseph’s Hospital, Toronto: Click Here
Accommodations near Hamilton Health Sciences, Hamilton: Click Here
Accommodations near the Kingston General Hospital, Kingston: Click Here
Accommodations near CHEO, Ottawa: Click Here
Accommodations near University Hospital, London: Click Here
Victoria Hospital, Children’s Hospital, London: Click Here
SeizureTracker:Expand SeizureTracker: Section
MedicAlert and medical identification:Expand MedicAlert and medical identification: Section
There are also a variety of other companies who provide medical identification alone such as Lauren’s Hope (based in the US but ships internationally) and Universal Medical ID (based in Ontario).
Further alternatives that may interest you include an ICE (In Case of Emergency) Tag (based in Ontario) and free printable medical ID cards from MedIDs.com.
Seizure alert/response dogs:Expand Seizure alert/response dogs: Section
The Lions Foundation of Canada has a program where eligible individuals could be provided with seizure response dog. You can find the page on this program here, as well as the application forms you will need to complete to apply for a dog. You can also learn more about seizure dogs in general on our website here.
Epilepsy programs in Ontario:Expand Epilepsy programs in Ontario: Section
- The University Health Network has an epilepsy clinic at the Toronto Western Hospital which you can read more about here.
- The London Health Sciences Centre has an epilepsy program, which you can read about on this page.
- McMaster Children’s Hospital (in Hamilton) has a paediatric epilepsy program which you can find more about on this page.
- Hamilton Health Sciences Centre has an epilepsy clinic, which you can find more about here.
- Children’s Hospital of Ontario (in Ottawa) has an epilepsy monitoring unit which you can read about here.
- The Ottawa Hospital has a neurosciences clinic which you can find more about on their website.
- St. Michael’s (in Toronto) has a neurology & musculoskeletal program that looks a epilepsy; read more here.
- SickKids (in Toronto) has a Neurologsy Epilepsy Monitoring Unit which you can read about here.
- Sudbury Regional Hospital (Health Sciences North, in Greater Sudbury) has an epilepsy monitoring bed; you can visit their site here.
Epilepsy is not a mental health disorder, but mental health challenges can arise alongside it, such as depression and anxiety. These are just as important to address as the physical ones – and there are several organizations throughout Ontario that can help you with them.
Children’s Mental Health Ontario:Expand Children’s Mental Health Ontario: Section
Canadian Mental Health Association Ontario:Expand Canadian Mental Health Association Ontario: Section
Ontario Mental Health Helpline:Expand Ontario Mental Health Helpline: Section
Mind Your Mind:Expand Mind Your Mind: Section
eMentalHealth.ca:Expand eMentalHealth.ca: Section
Online Communities and Connections
Sometimes it can be difficult to connect with other people, especially if your experiences aren’t well understood by those around you. Fortunately, in this day and age, technology can easily help bridge these gaps. There are forums online that you can join and speak to other people living with epilepsy – and they are free to register and join. These are also open to everyone, whether you have epilepsy yourself, or someone you care about does.