We may have a long way to go before everyone knows the facts about epilepsy, but progress is underway! Epilepsy and seizure disorders are slowly making their way into the media. Peruse the links below for some excellent articles that shed light on this often misunderstood brain condition.
2018Expand 2018 Section
Epilepsy Ontario Marks Completion of Ontario Trillium Foundation Funded Project: From Isolation to Inclusion
May 2, 2018
Epilepsy Ontario marked the completion of its Ontario Trillium Foundation funded project, From Isolation to Inclusion, with an open house on April 27th, displaying many of the resources and videos that the project helped create. Local MPP Gila Martow attended the event and spoke to the impact the funding has made.
"I am pleased to see that Epilepsy Ontario has used their Trillium Grant to advocate on behalf of families in our community", said Gila Martow, MPP for Thornhill. "The awareness and resources they provide helps promote independence and an optimal quality of life for people with seizure disorders."
[caption id="attachment_16067" align="alignright" width="300"] From left to right: Drew Woodley, Director, Government Relations, Epilepsy OntarioPaul Raymond, CEO, Epilepsy OntarioGila Martow, MPP, ThornhillGula Aitkulova, Administrative Assistant, Epilepsy OntarioBrenda Calleja, Coordinator, Special Projects, Epilepsy Ontario[/caption]
The From Isolation to Inclusion project worked to coordinate and develop resources from Ontario’s Community Epilepsy Agencies, including educational videos demonstrating different seizures types and how to respond appropriately, print materials for managing different aspects of epilepsy and how to assist someone having a seizure, and professional development resources for staff across the province.
“This Ontario Trillium Foundation project has helped create resources that Community Epilepsy Agencies throughout Ontario can use to support people living with seizures and educate the public” said Paul Raymond, CEO of Epilepsy Ontario. “These innovative and accessible materials are making a real difference in epilepsy education and support across the province.
The From Isolation to Inclusion project has been rolled out across the province and materials are being utilized by Ontario’s 13 Community Epilepsy Agencies to provide epilepsy education and support programs.
An agency of the Government of Ontario, the Ontario Trillium Foundation (OTF) is one of Canada’s largest granting foundations. With a budget of over $136 million, OTF awards grants to some 1,000 projects every year to build healthy and vibrant Ontario communities. www.otf.ca
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For more information contact:
Drew Woodley, Director of Government Relations, Epilepsy Ontario, [email protected]
2016Expand 2016 Section
Christian Noël, Radio-Canada - Les femmes épileptiques enceintes exigent de Santé Canada d’être mieux informées
August 23, 2016
Un médicament au centre d'un scandale en Europe, soupçonné d'avoir causé des dizaines de milliers de malformations congénitales, soulève de nombreuses questions au Canada | English translation: a drug [valproate] at the centre of a scandal in Europe, believed to have caused tens of thousands of birth defects raises many issues in Canada. Click on the title to read the full article. Article is in French.
CTV News Channel - Epilepsy drugs in short supply
February 15, 2016
2015Expand 2015 Section
22 July: World Brain Day 2015 devoted to epilepsy
July 22, 2015
News Release: International Bureau for Epilepsy
2014Expand 2014 Section
Brain Health
December 13, 2014
The National Post featured a special insert on brain health, including articles on epilepsy.
Canada AM: Drugs shortages in Canada
June 25, 2014
Canadian Medical Association President, Dr. Louis Hugo Francescutti, highlights the serious implications and effects on people’s lives when epilepsy medications are not available.
Family of man with epilepsy shot by police want justice, training for officers
January 21, 2014
Global News
2013Expand 2013 Section
Toronto Family Hopes for Access to Controversial Treatment to Cure Baby’s Rare Epilepsy
July 12, 2013
Global News
Mark McAllister Tells His Story of Living with Epilepsy
April 16, 2013
Global TV news reporter, Mark McAllister, experienced a seizure during a live news broadcast in 2011. After receiving his diagnosis and thanks to a supportive employer, Global TV and the support he received from Epilepsy Toronto, Mark has taken the courageous step in speaking publicly about his epilepsy in an effort to create greater awareness and understanding.
Global News
Inside Epilepsy
March 7, 2013
Global News' Five-Part Series.Global TV news reporter, Mark McAllister, and Whitney Ghoustone, a young mom who has had epilepsy surgery and become seizure free is featured and tell their stories.
