Epilepsy Ontario would like to get feedback from people born in 1996 or earlier living with epilepsy (or a seizure disorder) as well as feedback from their family members &/or caregivers. We would like to know how epilepsy has affected you, your family life, school, work, independence and community involvement. We also want to know about your experience with treatments that have been used, now or in the past.
IMPORTANT DEADLINE
Please complete this survey AS SOON AS POSSIBLE. Survey responses are due by Thursday September 4, 2014.
Get started now! >> Click here to do the survey
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PURPOSE
Epilepsy Ontario will use the survey data to summarize the experiences of adults living with epilepsy (or a seizure disorder) and their families/caregivers in our patient group submission to the national Common Drug Review regarding the review of APTIOM™ (eslicarbazepine acetate). This new anti-seizure medication has recently been approved for sale by Health Canada. You do not have to know about Aptiom™ in order to participate. The purpose of this survey is to get information about your experience with epilepsy.
Your responses are important and will help inform Epilepsy Ontario as we prepare a patient group submission. The Common Drug Review is the committee that will recommend whether Ontario and other provinces and territories in Canada (except for Quebec) should fund Aptiom™ under their public drug programs. Patient groups, like Epilepsy Ontario, have the opportunity to make a written submission to the Common Drug Review as part of the review process. Your input is important whether you receive drug coverage under a public drug program, a private plan or pay out-of-pocket for your medication.
In addition to the Common Drug Review submission, Epilepsy Ontario may also use information from this survey in order to convey the experiences of people living with epilepsy, as well as experiences of their families & caregivers, in future patient evidence submissions for drug reviews or other initiatives.
PRIVACY
Epilepsy Ontario takes your privacy very seriously and is committed to respecting the personal privacy of individuals completing this survey. Survey data will be reported either in aggregate form or in a manner that does not identify information about an individual. This survey is hosted on a Canadian online survey website (FluidSurveys). FluidSurveys stores all survey data in Canada.
If you have any questions about Epilepsy Ontario’s Privacy Policy please contact us at [email protected] or call 905-474-9696. You can also contact us toll-free in Ontario by phoning 1-800-463-1119.
TIME REQUIRED
The length of time required to complete the survey is approximately 15 minutes. The actual time will depend on the amount of detail you provide in your responses to the questions. Your time and your input are greatly appreciated.
