Are you affected by a drug shortage? Contact your health-care provider if your pharmacy is unable to fill your prescription. People with epilepsy should not make any changes to their treatment (i.e. skipping doses, reducing the dose, or discontinuing a drug) without consulting their health-care provider. Your physician or nurse practitioner can discuss the potential…
An upcoming three-day conference near Chicago in June will bring people representing clinical, basic science and patient/family communities together to get important information related to sudden unexpected death in epilepsy (SUDEP). “We’re trying to bring those three groups together to participate in a meeting that will still be high-level academic with some very high-level basic…
On March 30, 2012 the Institute of Medicine (IOM) released a report on the public health dimensions of epilepsy. Epilepsy Across the Spectrum: Promoting Health and Understanding has a number of recommendations to engage people in advocacy. The goal as always is to improve the lives of people living with epilepsy. Recommendations include: improving access…
An e-toolkit containing the latest research-based material aimed at providing information about sudden unexpected death in epilepsy (SUDEP) to four main target groups is now available online. The e-toolkit, which is available on SUDEP Aware’s website, contains key information pamphlets targeting health-care providers, people bereaved by SUDEP, teens and young adults, and people with epilepsy.…
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