Category Archive

Advocacy

Video helping law enforcement assess seizure disorders slated to be ready for Purple Day

December 7, 2012

Police officer Marcel Allen is hoping a video he’s working on for the Canadian Police Knowledge Network (CPKN) will help police officers nationwide better assess situations when approaching people who have gone into seizure. Since last speaking to the Voices of Epilepsy in March, Allen has been busy working on the video, which contains several…

Survey seeking first-hand stories about living with epilepsy

November 22, 2012

A new survey available on the Epilepsy Ontario website is aiming to discover what the epilepsy community wants to talk about and to seek out people’s experiences of living with the neurological disorder and the key issues important to them. Epilepsy Ontario executive director Rozalyn Werner-Arcé says the organization is hoping the survey will provide…

Epilepsy Halton Peel Hamilton aiming to raise $50K in marathon

October 9, 2012

About 130 people will be running under the Epilepsy Halton Peel Hamilton banner at the Oct. 14 Scotiabank Toronto Waterfront Marathon, an annual five- and 2.5-kilometer run that raises money for a myriad of charities. The agency is hoping the event will raise $50,000. Money raised will continue to support the programs, services, education and…

Grassroots group to launch Dravet syndrome information website

August 9, 2012

A grassroots group of parents of children living with Dravet syndrome is working to form a Canadian branch of Dravet.org, a U.S.-based global collaboration of parents and medical experts dedicated to improving treatments for children with Dravet syndrome spectrum disorders and empowering families to cope with challenges. The parents, most of whom live in the…