Epilepsy Durham Region
Mission
Dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders, through information, awareness, support, advocacy, education and research.
Values:
- Accountability to the public
- Efficient and cost effective management
- Treating all persons with integrity and honesty
- Respect and diversity
ServicesOur reference text and video lending library includes an assortment of pamphlets, books, magazines video tapes, and articles about the many aspects of epilepsy available to our members only. A security deposit of $10.00 is required.
Our newsletter is published on a quarterly basis. It includes information about upcoming community events, programming schedules, information from other epilepsy chapters and current information about epilepsy and its treatment.
Awareness/Educational presentations are available to schools, older adults, corporate sector, service clubs, women's groups, agencies and the local business community.
Teacher and Parent Reference Tool Kits are available.
Volunteer Facilitated support groups take place monthly.
Volunteers play an integral role in EDR's ability to provide quality services to its membership. Join our team and make a difference to the estimated 12,000 individuals living with a seizure condition.
Community Events
Click here for the latest events:
www.epilepsydurham.com/news.html
Thinking About Epilepsy
The focus of this innovative new programme is to dispel myths, dissolve barriers, teach first response protocol for all types of seizures and to ensure that a safe environment for people living with epilepsy is provided by our community. The greater goal is to promote inclusion, tolerance and acceptance of individuals touched by this disorder and to positively impact attitudes.
This in-service educational programme can be delivered to service providers, educators, students, and employers. "Thinking About Epilepsy" will elevate the quality of life for many residents in Durham Region. Imagine a society without fear, stigma and misunderstanding. Education can make this a reality. Click here to learn more about
Thinking About Epilepsy.
Living Well with Epilepsy : A Parents' Forum
Having epilepsy or caring for someone who does can be very challenging. Sometimes the practical problems of daily living - from insurance, to jobs, to medical care - can seem overwhelming. At other times, it helps just to talk to people who understand what its like to live with epilepsy. This newly launched programme offers families and care givers an opportunity to share challenges and successes with one another. Click here to learn more about
Living Well with Epilepsy.
Peer to Peer Network
A network of individuals living with epilepsy who are willing to share their experiences. A link is made based upon commonalities and experiences. This support group consists of network members who have undergone epilepsy surgery and are open to sharing their experiences with those considering surgery as a treatment option.
Employment Support
Getting and keeping a job can be especially difficult for the person with epilepsy. Employment-related workshops and support are available to people with epilepsy.
Epilepsy Ambassadors
Volunteers and staff are committed to increased public awareness about epilepsy and seizure disorders through the distribution of literature and information displays.
Information and Education
Being informed about epilepsy is key to being able to live successfully with this disability. We offer many opportunities for our members to learn more about epilepsy and to stay current. For example, our Epilepsy Resource Centre contains a lending library of books, videos and resource materials; our newsletters provide up-to-date information; and our Lecture Series address topics of interest with expert guest speakers.
Child, Parent and Family Coaching
EDR staff is available to assist families on coping successfully with epilepsy. It is our goal to bridge the gap between diagnosis, treatment, and every day living.
Educational Presentations
Professional consultations or in-service workshops: Informative presentations on epilepsy and seizures in adults and/or children are available to interested social service agencies, schools, employers, and other organizations.
Epilepsy Resource Centre
The Epilepsy Resource Centre contains pamphlets, videos, books and articles covering a wide variety of topics and concerns. Our web site,
www.epilepsydurham.com, also acts as a powerful resource for those who are unable to visit our Resource Centre.
Lectures Series
Our free Lecture Series offers informative talks on requested topics by experts in the field. These discussions are open to members and non-members alike, as well as family members, support workers, and the general public. Click here to learn more about our
Lecture Series.
Join Epilepsy Durham Region
- Membership Fee: $15.00
- Renewable membership fee: $10.00
All memberships are renewable each year in October. Electronic applications for membership are available.
Introducing Lora, the Lavender Labrador
This cute plush lavender 15" dog was designed by Epilepsy Durham Region to raise the awareness of epilepsy and support those living with epilepsy.
Order your dogs at $15.00 each.
Volunteer Opportunities
Volunteers play an integral role in supporting those living with Epilepsy or a seizure condition in our organization: Share the dream of a better life with Epilepsy by volunteering,
Volunteer opportunities include:
- Outreach Education, Public Relations
- Fund Raising, Support Group Facilitator
- Administrative Support
Please contact our office for further details on how you can join our team of enthusiastic and commitment volunteers.
Privacy Policy
We respect your right to privacy, so please be advised that our agency does not share our membership list with outside organizations. Occasionally, we may ask you to volunteer some information so that we can better understand the needs of our members and improve our services.Any and all information volunteered is considered extremely confidential and will not be shared without a signed release of information.
DID YOU KNOW?... There are twice as many Canadians living Epilepsy than with Cerebral Palsy, Muscular Dystrophy, Multiple Sclerosis and Cystic Fibrosis combined. Working together we can make a difference. Please consider making a donation to Epilepsy Durham Region. A charitable income tax receipt will be issued.
