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 for Parents, Teachers & Caregivers of
Children living with Epilepsy
This kit offers useful information for parents, teachers and caregivers of children with seizure disorders in both a standard web presentation format (HTML) and the convenient, easy-to-use "PDF" format.
PDF files are divided into sections to allow you to print only those which are needed.
Each page can be punched and stored in a 3-ring binder, if desired.
Education about epilepsy
will help to eliminate
people's fears, misunderstandings, myths
and tendencies to avoid or overprotect
a child with epilepsy.
What is Epilepsy? [ PT01.pdf - 9 pages ] a simple description of epilepsy, its causes, possible seizure indicators, its prevalence, and information about seizure diagnosis, as well as descriptions of the most common types of seizures, a brief outline of treatments, possible triggers, and some safety concerns for children who experience seizures
Treatments for Children with Epilepsy [ PT03.pdf - 7 pages ] conventional and less conventional treatment options and approaches
Diagnostic Tests [ PT02.pdf - 2 pages ] various tests used in the diagnosis of epilepsy
Doctors who Treat Epilepsy (New) [ PT09.pdf - 3 pages ] Dealings with doctors who treat epilepsy
Other Conditions [ PT04.pdf - 4 pages ] Children are more likely to have epilepsy if they have certain other medical conditions.
Psychosocial Effects of Epilepsy [ PT05.pdf - 7 pages ]
the effects of fear, quality of life, the stigma of epilepsy, disclosure, children and self esteem, the effects of epilepsy on parents and children, and depression in children with epilepsy
Stages of Childhood Development (New) [ PT10.pdf - 3 pages ]
outlines of the principle stages of development in children
Epilepsy and the Family [ PT06.pdf - 5 pages ] epilepsy's impact on the family, parents, children with epilepsy, siblings, grandparents, and other caregivers, and how you can help
School [ PT07.pdf - 10 pages ] The school setting is perhaps second only to the family in being an influential social institution for children and youth. How teachers relate to the child with epilepsy can impact on how the child with epilepsy and his/her classmates feel about epilepsy for the rest of their lives. epilepsy & learning, the implications of epilepsy on teachers, children with epilepsy and other classmates
Special Education in Ontario [ PT08.pdf - 5 pages ] All children learn at different rates and in different ways. Schools in Ontario must accommodate these differences by offering special education services. A child's right to special education is protected in Ontario by provincial legislation.
The following material is available in PDF format only.
First Aid [ First_Aid.pdf - 1 page ] Information Sheet [ InfoSheet.pdf - 2 pages ]
useful information about your child's specific medical condition for all caregivers, including day care staff, teachers, bus drivers, coaches, babysitters, camp counsellors...
Letter to my Teacher [ letter_to_teacher.pdf - 4 pages ] for children to use in disclosing to their teachers
Book List [ Booklist.pdf - 2 pages ] more information for children and adults
Cover [ cover.pdf - 2 pages ]
for Parents, Teachers & Caregivers of
Children Living with Epilepsy
is available on an interactive CD-ROM
(compatible with Windows® 95, 98 & Me.)
Single copies of this disk are available
to residents of Ontario at no charge.
(Your donation to help cover shipping & handling costs is appreciated.)
Made possible by
the Ministry of Citizenship of the Government of Ontario
to residents of other provinces in Canada
for $10 (including postage & taxes)
to residents of other countries
for CDN$10 plus shipping & handling |
The support of the Government of Canada through the
Summer Career Placements programme of
Human Resources Development Canada
is acknowledged.
Thanks to
Michele Zysman
for her work in this project.
Since its initial publication,
this information kit has been expanded
to include information originally published in
Epilepsy & your Child: Parents' Information Booklet.
Acknowledgements
The Parent's Information Booklet was developed by the staff of the Bloorview Epilepsy Program, the Bloorview Children's Hospital, the Hospital for Sick Children, and the Epilepsy Association Metro Toronto [now Epilepsy Toronto]. It grew out of discussions with parents in the Bloorview Parent's Group.
The Parents' Information Booklet was originally developed with funds provided by the Bloorview Children's Hospital Foundation and was first produced with an educational grant from Ciba-Geigy Canada, Ltd. It was edited by McIntyre Burnham of the Bloorview Epilepsy Program. The current revision was edited by John G Phair of Epilepsy Ontario and published by Novartis Pharmaceuticals Canada Inc.
Epilepsy Ontario would like to thank the many contributors to the Parents' Information Booklet, including:
Carlota Basualdo-Hammond, Marty Hennig, Anne MacDiarmid and Molly Weaver (Bloorview MacMillan Centre); Lucyna Lach and Janice Mulligan (Hospital for Sick Children); and Alla Vilner (Bloorview Epilepsy Program).
Epilepsy Ontario would also like to thank the physicians who shared their time and expertise, including:
Warren Blume (University Hospital), Peter Carlen (Toronto Hospital), Rosalind Curtis, Keith Meloff (Bloorview MacMillan Centre), Richard Gladstone (North York General Hospital), Alan Guberman (Ottawa General Hospital), Paul Hwang (Hospital for Sick Children), Jeffrey Kobayashi (Hospital for Sick Children and Bloorview MacMillan Centre), Andres Lozano (Toronto Hospital) and Donald Weaver (Kingston General Hospital).
© 2000, 2001
Epilepsy Ontario
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To submit questions, comments, or suggestions please click here.
Last Modified: 07/17/2006 01:05:56 PM
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