Category Archive

Voices of Epilepsy

SUDEP conference aiming for mass engagement, increased awareness

May 10, 2012

An upcoming three-day conference near Chicago in June will bring people representing clinical, basic science and patient/family communities together to get important information related to sudden unexpected death in epilepsy (SUDEP). “We’re trying to bring those three groups together to participate in a meeting that will still be high-level academic with some very high-level basic…

Institute of Medicine Report on Epilepsy

May 4, 2012

On March 30, 2012 the Institute of Medicine (IOM) released a report on the public health dimensions of epilepsy. Epilepsy Across the Spectrum: Promoting Health and Understanding has a number of recommendations to engage people in advocacy. The goal as always is to improve the lives of people living with epilepsy. Recommendations include: improving access…

Latest SUDEP info available online

May 3, 2012

An e-toolkit containing the latest research-based material aimed at providing information about sudden unexpected death in epilepsy (SUDEP) to four main target groups is now available online. The e-toolkit, which is available on SUDEP Aware’s website, contains key information pamphlets targeting health-care providers, people bereaved by SUDEP, teens and young adults, and people with epilepsy.…

Information specialist brings myriad of experience to the table

April 26, 2012

People affected by epilepsy who need answers to their questions can turn to Suzanne Nurse, who is an excellent information resource and who has a myriad of experience working with people who have epilepsy. Nurse, Epilepsy Ontario’s new epilepsy information specialist, also holds a PhD in medicine with specialization in neuroscience. Through her new role,…