Category Archive

Voices of Epilepsy

Advocate puts a face to the need for epilepsy strategy

June 28, 2012

Given the high number of Ontarians living with epilepsy, there needs to be an effective action plan to support the quality of life of people affected by the neurological disorder, says Miranda Zeppieri. Zeppieri, 28, knows this first-hand — she has had a seizure disorder caused by tuberous sclerosis her whole life, and this is…

Epilepsy strategy creates ‘once-in-a-lifetime opportunity’

June 22, 2012

One of the experts who helped develop the province’s epilepsy strategy is characterizing the proposal as a “once-in-a-lifetime opportunity” for people affected by the neurological disorder and physicians who treat patients with epilepsy. Dr. Carter Snead, who heads the neurology department at Toronto’s Hospital for Sick Children (SickKids), says the one in 100 Ontarians living…

Epilepsy community encouraged to show support for proposed provincial strategy

June 21, 2012

Epilepsy Ontario is urging the epilepsy community to help end disparities in epilepsy care in the province. Many people living with uncontrolled seizures in Ontario do not get access to the medical services they require. To address the problem and help people access services, a panel of epilepsy experts, in conjunction with the Ontario Health…

Epilepsy Ontario examines strategy delivery in a changing world

June 7, 2012

Looking ahead into fiscal year 2012-13, Epilepsy Ontario needs to examine ways to deliver its strategy in a world that’s changing for nonprofit organizations. This was Epilepsy Ontario executive committee president Elisa McFarlane’s message at the organization’s May 29 annual general meeting. Of note, Epilepsy Ontario needs to be looking at four key trends —…