Category Archive

Advocacy

Toronto boy raises $7K through bake sale to send 4 kids to Summerfest Camp

June 15, 2017

By Deron Hamel A Toronto boy has raised more than $7,000 with a bake sale he spearheaded to send four children living with epilepsy to Summerfest Camp. Nine-year-old Brody, who was diagnosed with epilepsy last September, told his mother, Tammy Baruch, he wanted to do something in recognition of Purple Day, the international day of…

2 charities partner to create educational sessions focused on Dravet spectrum disorders

March 27, 2017

By Deron Hamel Dravet Canada and SUDEP Aware have partnered to deliver a series of educational sessions led by researchers and clinicians to provide the latest information about Dravet spectrum disorders to families and caregivers of people living with the condition. The first Dravet Day events are being held April 8 in Toronto and St.…

Epilepsy Ontario engages MPPs and policy makers at Epilepsy Action Day 2017

March 9, 2017

By Deron Hamel TORONTO – Epilepsy Ontario executive director Paul Raymond says the success of the sixth Epilepsy Action Day at Queen’s Park on Feb. 28 was the overwhelming engagement from MPPs and policy makers had about the agency’s epilepsy care advocacy agenda. MPPs and policy makers offered Epilepsy Ontario suggestions to help move its…